A Landmark Achievement: State-Level Sickle Cell Awareness Programme & Doctor–Patient Live Interaction
“Together for a Sickle Cell-Free Future”
Official Record & Mission Report
The National Alliance for Sickle Cell and Thalassemia Control (NASTC) achieved another major milestone by successfully organising a Sickle Cell Awareness Programme and Doctor–Patient Live Interaction on 26th September 2026 at Hotel Atmaram, Jaydev Vihar, Bhubaneswar, Odisha.
This programme marked an important step in NASTC's mission to bridge the gap between patients, medical professionals, and healthcare authorities.
The event brought together distinguished medical experts, government health officials, Sickle Cell patients, their families, and representatives of NASTC under one platform. The programme was graced by Dr. Ruby Khan, National Health Mission (NHM), Madhya Pradesh, as the Chief Guest, along with Dr. Dinabandhu Sahoo and Dr. Bijay Mohapatra from NHM, Odisha, and other distinguished guests.
Renowned medical experts, including Prof. R. K. Jena, Prof. M. R. Mahapatra, Prof. T. K. Dolai, Prof. Jina Bhattacharyya, Prof. Maitreyee Bhattacharyya, Prof. H. Pati, and others, contributed their valuable knowledge and expertise.
One of the most significant aspects of this initiative was creating a common platform where patients could directly interact with experienced doctors, discuss their concerns, understand available healthcare facilities, and receive valuable guidance.
Organising such a programme with the participation of senior medical professionals and government health representatives was a proud achievement for NASTC, especially as a growing patient-support organisation.
This initiative demonstrated that NASTC is not merely building a patient network but actively working to connect patients with healthcare professionals, promote awareness, encourage collaboration, and improve access to healthcare services.
For NASTC, this was more than an event. It was a step towards building a stronger, more informed, and patient-centred Sickle Cell care ecosystem in Odisha.
Together for a Sickle Cell-Free Future.
Distinguished Dignitaries & Medical Faculty Panel
Conducted on 26th September 2026 at Hotel Atmaram, Jaydev Vihar, Bhubaneswar
Dr. Ruby Khan, National Health Mission (NHM), Madhya Pradesh
The Challenge in Odisha
Sickle cell patients often face immense barriers in accessing super-specialist hematologists and navigating complex health administration systems. Misinformation regarding pain crises, modern therapeutics, and available state welfare facilities often leads to delayed treatment and preventable complications.
Our Intervention Strategy
NASTC brought senior government health officials, top academic hematologists, and grassroot patients together into a single room. Instead of traditional lecture-only seminars, this event dedicated substantial time to open, direct live dialogue where patients and parents could voice personal struggles and receive authoritative, compassionate medical guidance.
Key Deliverables & Action Outcomes
Ground Reality & Lasting Impact
Patients and parents from various parts of Odisha shared their lived challenges directly with Dr. Ruby Khan (NHM, Madhya Pradesh) and eminent professors of hematology. The interactive format cleared deep-seated anxieties about hydroxyurea therapy, emergency hospital protocols, and daily hydration management, while alerting authorities to on-ground supply realities.
“For NASTC, this was more than an event. It was a step towards building a stronger, more informed, and patient-centred Sickle Cell care ecosystem in Odisha.”
Visual Documentation Gallery
Milestone Specifications
- Classification
- Frontline Healthcare
- Timeline / Date
- 26th September 2026 (2026)
- Geographic Scope
- Hotel Atmaram, Jaydev Vihar, Bhubaneswar, Odisha
- Official Venue
- Hotel Atmaram, Jaydev Vihar, Bhubaneswar
- Verification Authority
- Government of Odisha & NASTC
“Together for a Sickle Cell-Free Future.”
Institutional Partners & Authorities
- National Health Mission (NHM), Government of Odisha
- Eastern Hematology Group & Odisha Hematology
- SCB Medical College & Hospital Hematology Alumni
- NASTC Patient Advisory Network
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